Brain Tumour Suport Groups
Freecall 1300 755 632 Monday – Friday 9am – 5pm or email [email protected]
The Cancer Council NSW provides the opportunity for you to talk with other people living with a brain tumour. Being telephone based you can join the group from anywhere in Australia. Brain Tumour patients telephone support group meetings are held on the FIRST and THIRD Monday of each month.
Cancer Connect – Telephone 13 11 20
The Cancer Council can put you in touch with a support person who has a similiar diagnosis. Volunteers are trained to provide practical information and emotional support. They do not give medical adv or provide professional counselling.read more
Samantha Wright has her own website and twitter account which provides online support for people with lower grade brain tumours.
Grey Matters is support group for those living with a non-malignant and low grade brain tumours.
There is also a shared brain tumour care coordinator at Royal Melbourne Hospital (Marcia Fleet 03.93424589).
BrainLink Services Ltd (Melbourne) has advised: “We provide resources & information about services to people with Acquired Brain Injury, including people with brain tumours. We also keep a list of the (very few) support groups in Victoria, including our group in Blackburn for people with primary malignant tumours. We also hope to start another group next year, for people with benign tumours. BrainLink Services Ltd. The Nerve Centre 54 Railway Road Blackburn VIC 3130 Freecall: 1800 677 579 Fax: 03) 9845 2882 [email protected]
The Brain Tumour Support Service based at Austin Health provides a range of services to people affected by the diagnosis of a primary brain tumour including a monthly support group, information/education programs, individual support appointments and support for carers’. The Brain Tumour Support Group is held on the 2nd Wednesday of the month 11am-1pm at the Olivia Newton-John Cancer & Wellness Centre, 145 Studley Road, Heidelberg. Contact person is Di Legge (Brain Tumour Support Officer) 9496 3315 or [email protected]
Cabrini Neuro-Oncology program, integrates care from diagnosis through-out illness with an extensive specialist multidisciplinary team. Cabrini Neuro-Oncology Nurses co-ordinate and deliver care to patients in hospital and people living in the community with primary malignant brain tumours.
New South Wales
Sydney Neuro-Oncology Group (SNOG) Brain Tumour Support Group. North Shore Private Hospital. Holds meetings every two months with a guest speaker.read more
BTAA’s Sydney peer to peer Support Group meets on the first Friday of the month at the Chris O’Brien Lifehouse in Camperdownread more
The Dept of Neurosrgery and Cancer Therapy at Liverpool Hosp, host a monthly education and support programme for people diagnosed with brain tumours.read more