Patient Perspective Awareness

Personal Awareness Prior to Diagnosis:

I was aware but had no information: 0
I was not aware at all of brain tumours: 0
I was very aware of brain tumours: 0
I was aware (I have a family member with a brain tumour): 0
Not answered 0

General Awareness Roadblocks

Lack of knowledge of the therapeutic benefits of chemotherapy 0
Lack of knowledge of the side effects of chemotherapy 0
Lack of knowledge about alternative treatment options 0
Lack of information about financial assistance available 0
Lack of information about how I go about finding a good surgeon 0
Lack of information about the availability of clinical trials in Australia 0
Lack of information about how to get results of clinical trials 0
Lack of information about where to get support 0
Lack of Information about the latest research 0
Other * 0

GENERAL PRACTITIONER AWARENESS

I was the first brain tumour patient my G.P. came across: 0
My/Our G.P. was well aware of brain tumours but had never before had a brain tumour patient: 0
My/Our G.P. had previous experience with brain tumour patients and addressed it straight away: 0
i knew I had a brain tumour even tho my GP thought it was something else. She listened to my and sent me to hospital anyway: 0
My/Our G.P. initially thought the brain tumour was something else but did eventually arrive at a correct diagnosis: 0
My/Our G.P was not involved in the diagnosis: 0
My/Our G.P had no brain tumour experience or skills to deal with one: 0
I do not know: 0
They just wanted to refer me on as too complicated so again made me feel like I was odd 0