Engagement

Membership of a Support Group

Yes 19
No 3
Formerly (Not Currently) 4
I Don’t Know 0
Not answered 1

Discussing my Journey

I’m comfortable talking about it because it raises awareness 10
I’m not comfortable talking about it 1
I would prefer not to talk about it but I’m comfortable talking about it when asked 8
I am careful about who I talk to about my journey 2
I’m not sure 1
Not answered 5

Reason(s) for Support Group Membership

To get information about services available 5
To get information about treatment options 5
To get information about the latest research 4
To share the story of my own brain tumour journey 4
To hear about other peoples brain tumour journey 6
To be involved socially with others on a similar journey 6
To have someone to talk to 4
To have someone to help with some day to day living tasks eg. transport 1
To offer my support to other brain tumour patients and carers 4
Other * 0

Success of the Support Group

Information about services available 4
Information about treatment options 5
Information about latest research 3
Someone to talk to 2
The opportunity to share my brain tumour journey 3
The opportunity to hear about other peoples brain tumour journey 6
It has provided an understanding social setting 5
Someone to help with some day to day living tasks eg. transport 0
I have been able to offer support to other brain tumour patients and carers 5
It has not really helped at all 0
Other * 0

Reasons for not belonging to a support group

I have fully recovered and no longer need support 0
The support group I was a member of didn’t offer me the support I needed 0
There were conflicts within the group that made it difficult to stay 0
I have never been made aware of the existence of a support group 1
The support group meets at a time and place that is not convenient for me 0
I haven’t felt that a support group is beneficial to me 0
I’m too unwell to travel to a support group meeting 0
Other * 0