Engagement

Membership of a Support Group

Yes 21
No 1
Formerly (Not Currently) 2
I Don’t Know 0
Not answered 1

Discussing my Journey

I’m comfortable talking about it because it raises awareness 9
I’m not comfortable talking about it 1
I would prefer not to talk about it but I’m comfortable talking about it when asked 7
I am careful about who I talk to about my journey 2
I’m not sure 1
Not answered 5

Reason(s) for Support Group Membership

To get information about services available 4
To get information about treatment options 4
To get information about the latest research 3
To share the story of my own brain tumour journey 4
To hear about other peoples brain tumour journey 4
To be involved socially with others on a similar journey 5
To have someone to talk to 3
To have someone to help with some day to day living tasks eg. transport 0
To offer my support to other brain tumour patients and carers 4
Other * 0

Success of the Support Group

Information about services available 4
Information about treatment options 4
Information about latest research 3
Someone to talk to 2
The opportunity to share my brain tumour journey 3
The opportunity to hear about other peoples brain tumour journey 5
It has provided an understanding social setting 4
Someone to help with some day to day living tasks eg. transport 0
I have been able to offer support to other brain tumour patients and carers 5
It has not really helped at all 0
Other * 0

Reasons for not belonging to a support group

I have fully recovered and no longer need support 0
The support group I was a member of didn’t offer me the support I needed 0
There were conflicts within the group that made it difficult to stay 0
I have never been made aware of the existence of a support group 1
The support group meets at a time and place that is not convenient for me 0
I haven’t felt that a support group is beneficial to me 0
I’m too unwell to travel to a support group meeting 0
Other * 0

Subscribe to new Brain Tumour Posts

Kia Ora. Sorry for the interruption but if you type your name and email address in the fields provided you'll receive my latest brain tumour scribblings as soon as they roll off the press. What could be better, other than good coffee in the morning, comfortable non-slip gumboots, peace in the Middle East, politicians who don't govern out of self-interest and a cure for all types of diseases, including, but by no means limited to, brain cancer.

You have Successfully Subscribed!

Subscribe to Brain Tumour Posts

Join my mailing list to receive the latest brain tumour posts.

You have Successfully Subscribed!

Subscribe to new Brain Tumour Posts

Kia Ora. Sorry for the interruption but if you type your name and email address in the fields provided you'll receive my latest brain tumour scribblings as soon as they roll off the press, so to speak. What could be better, other than good coffee in the morning, comfortable non-slip gumboots, peace in the Middle East, having politicians who don't govern out of self-interest and a cure for all types of diseases, including, but by no means limited to, brain cancer.

You have Successfully Subscribed!