Quality of Life

Fatigue (PATIENT)

Yes, I do suffer chronic fatigue 11
Yes, I do suffer increased fatigue but I am not chronically fatigued 12
No, I do not suffer increased fatigue 2
Not answered 1

How have your fatigue levels changed since your brain tumour? *

A significant increase in fatigue 13
A marginal increase in fatigue 4
No change in fatigue levels 1
A marginal decrease in fatigue 0
A significant decrease in fatigue 0
Not answered 9

Balance Issues

Constant balance problems 8
Every now and then 11
I had balance problems but I have since returned to normal 2
I have never had balance issues 4
Not answered 2

BALANCE ISSUES (grouped by Tumour Type):

Glioblastoma Multiforme (GBM) – 4

Constant balance problems 2
Every now and then 1
I had balance problems but I have since returned to normal 0
I have never had balance issues 1
Not answered 0

Oligodendroglioma – 3

Constant balance problems 0
Every now and then 0
I had balance problems but I have since returned to normal 1
I have never had balance issues 1
Not answered 1

Astrocytoma – 3

Constant balance problems 0
Every now and then 3
I had balance problems but I have since returned to normal 0
I have never had balance issues 0
Not answered 0

Meningioma – 13

Constant balance problems 4
Every now and then 6
I had balance problems but I have since returned to normal 1
I have never had balance issues 2
Not answered 0

Fatigue (CARER/FAMILY MEMBER)

My fatigue is debilitating and prevents my ability to function normally 3
My fatigue does prevent a normal lifestyle but it is not debilitating 4
My fatigue is moderately debilitating but does not prevent my ability to function normally 1

Quality of Sleep since Surgery or Treatment

Better 5
Worse 14
About the Same 5
Not Answered 0

Amount of Sleep since Surgery or Treatment

Less than 2 hrs per day 0
2-4 hrs per day 1
4-6 hrs per day 4
6-7 hrs per day 4
7-8 hrs per day 4
More than 8 hrs per day 5
Not Answered 9

Type of Memory Loss

Short Term memory loss
12
Long Term memory loss
0
Both Short and Long Term memory loss
9
No memory loss issues
6

Length of Time with Memory Loss

< 1 Month 1
1-6 Months 2
6-12 Months 2
1-2 Years 3
> 2 Years 12
No Memory Loss 7

If your physical and mental well being has been affected by stress can you tell us to what extent stress has had an impact?

Very Considerably 5
Somewhat Considerably 2
A Mild Impact 0
Other * 0

Rest during the day

More than 3 times a day 4
Everyday 5
Most days 2
Some days 3
None 0
Not answered 8

Currently Driving a Motor Vehicle

Yes 17
No 8
Not answered 2

Current Work Arrangements

Employed Full-Time 6
Employed Part-Time 4
Self-employed 3
Not employed but looking for work 0
Not employed and not looking for work 3
Homemaker 1
Doing volunteer work 1
Retired 3
Student 1
Prefer Not to Answer 0
I have not been able to return to work 3
Not answered 2

Disorientation

All the time 5
Frequently 6
Sometimes 9
Never 2
Not Sure 0
Not answered 5

Concentration

I am unable to read for the length of time that I used to 8
I have to study in smaller chunks of time 6
I often need to excuse myself from conversations 12
I don’t retain written or verbal information 7
My concentration has returned to normal 1
My concentration has not been affected 0
Other * 0

Impact on Overall Quality of Life

Loss of Income 11
Financial Impact (Cost of Surgery/Treatment) 8
Loss of independence 12
Alienation from family/friends 10
Loss of physical mobility 9
Loss of motivation 10
Anxiety & Depression 11
There has been no impact on my quality of life 2
Other * 0