Quality of Life

Fatigue (PATIENT)

Yes, I do suffer chronic fatigue 9
Yes, I do suffer increased fatigue but I am not chronically fatigued 12
No, I do not suffer increased fatigue 2
Not answered 1

How have your fatigue levels changed since your brain tumour? *

A significant increase in fatigue 11
A marginal increase in fatigue 4
No change in fatigue levels 1
A marginal decrease in fatigue 0
A significant decrease in fatigue 0
Not answered 9

Balance Issues

Constant balance problems 8
Every now and then 11
I had balance problems but I have since returned to normal 1
I have never had balance issues 3
Not answered 2

BALANCE ISSUES (grouped by Tumour Type):

Glioblastoma Multiforme (GBM) – 3

Constant balance problems 2
Every now and then 1
I had balance problems but I have since returned to normal 0
I have never had balance issues 0
Not answered 0

Oligodendroglioma – 2

Constant balance problems 0
Every now and then 0
I had balance problems but I have since returned to normal 0
I have never had balance issues 1
Not answered 1

Astrocytoma – 3

Constant balance problems 0
Every now and then 3
I had balance problems but I have since returned to normal 0
I have never had balance issues 0
Not answered 0

Meningioma – 13

Constant balance problems 4
Every now and then 6
I had balance problems but I have since returned to normal 1
I have never had balance issues 2
Not answered 0

Fatigue (CARER/FAMILY MEMBER)

My fatigue is debilitating and prevents my ability to function normally 3
My fatigue does prevent a normal lifestyle but it is not debilitating 3
My fatigue is moderately debilitating but does not prevent my ability to function normally 1

Quality of Sleep since Surgery or Treatment

Better 5
Worse 12
About the Same 5
Not Answered 0

Amount of Sleep since Surgery or Treatment

Less than 2 hrs per day 0
2-4 hrs per day 1
4-6 hrs per day 3
6-7 hrs per day 3
7-8 hrs per day 4
More than 8 hrs per day 5
Not Answered 9

Type of Memory Loss

Short Term memory loss
10
Long Term memory loss
0
Both Short and Long Term memory loss
9
No memory loss issues
6

Length of Time with Memory Loss

< 1 Month 1
1-6 Months 1
6-12 Months 1
1-2 Years 3
> 2 Years 12
No Memory Loss 7

If your physical and mental well being has been affected by stress can you tell us to what extent stress has had an impact?

Very Considerably 3
Somewhat Considerably 2
A Mild Impact 0
Other * 0

Rest during the day

More than 3 times a day 3
Everyday 4
Most days 2
Some days 3
None 0
Not answered 8

Currently Driving a Motor Vehicle

Yes 17
No 6
Not answered 2

Current Work Arrangements

Employed Full-Time 5
Employed Part-Time 4
Self-employed 3
Not employed but looking for work 0
Not employed and not looking for work 3
Homemaker 1
Doing volunteer work 1
Retired 3
Student 1
Prefer Not to Answer 0
I have not been able to return to work 2
Not answered 2

Disorientation

All the time 4
Frequently 5
Sometimes 9
Never 2
Not Sure 0
Not answered 5

Concentration

I am unable to read for the length of time that I used to 6
I have to study in smaller chunks of time 5
I often need to excuse myself from conversations 10
I don’t retain written or verbal information 5
My concentration has returned to normal 1
My concentration has not been affected 0
Other * 0

Impact on Overall Quality of Life

Loss of Income 11
Financial Impact (Cost of Surgery/Treatment) 7
Loss of independence 10
Alienation from family/friends 9
Loss of physical mobility 7
Loss of motivation 10
Anxiety & Depression 10
There has been no impact on my quality of life 1
Other * 0

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Subscribe to new Brain Tumour Posts

Kia Ora. Sorry for the interruption but if you type your name and email address in the fields provided you'll receive my latest brain tumour scribblings as soon as they roll off the press, so to speak. What could be better, other than good coffee in the morning, comfortable non-slip gumboots, peace in the Middle East, having politicians who don't govern out of self-interest and a cure for all types of diseases, including, but by no means limited to, brain cancer.

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