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You Tube video diary

Err on the side of Kindness

You might be wondering who I’m quoting here. A clergyman perhaps? Or clergywoman? if you can find one. A nurse? An artist?

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The Virtue of Not Knowing Too Much

“Sometimes you’re better off not knowing,” I said to a good friend as we sat outside sipping coffee. He nodded in tacit agreement, without completely understanding what I was trying to say, giving me permission to keep going, not that I’ve ever particularly needed such a wave of the hand allowing me to forge ahead.

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Whirly Gigs, Pliés and Other Tricks and Obstacles

Things are somewhat difficult just at present. I stumble, almost falling backwards and all I’m doing is making lunch, a toasted sandwich. It’s the price I’m paying for having the brain tumour removed and the subsequent and ongoing recovery of same.

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Between the Black & the White

Half-wracked prejudice leaped forth
“Rip down all hate,” I screamed
Lies that life is black and white
Spoke from my skull. I dreamed
Romantic facts of musketeers
Foundationed deep, somehow
Ah, but I was so much older then
I’m younger than that now

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A Question of Balance

Before I go on, I should preface my comments by saying that my intended audience for this missive is not the brain tumour community, they may read this and remark “tell me something I don’t already know”. It’s for anyone who may know a brain tumour survivor, or has met one, and who wonders what the fuss is about.

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Absolutely Nothing

Clive James, in answering a question about his writing life, a question about the writing process, answered thus, “I get up in the morning, make myself a cup of coffee, walk up the stairs to my office, stare out the window and do what all great writers must do, absolutely nothing.”

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A Profound Change

For most of us, dare I say all of us, our lives are filled with the mundane. I’m sorry to break it to you this way, it may come as a shock. With the profound on the other hand, where an insight of emotional depth and intensity is revealed, we often, as individuals, as a society, flick pass it and shake our heads in wonder, not taking the time that is perhaps required to understand how it came to be, or perhaps even to see it at all.

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Brain Tumour Awareness Week

I attended a conference this week, one where my qualification enabling me to attend consisted of being a brain tumour survivor. COGNO, it’s a grand acronym to be sure, stands for the Co-Operative Trials Group for Neuro Oncology, held in Melbourne, conveniently enough, during International Brain Tumour Awareness Week.

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Something Worth Writing

Following the 15 hour surgery on my brain 12 months ago, the whole left side of my body was left paralysed. There is still some way to go. My left hand still experiences constant pins & needles. It has about half of its required strength and dexterity. The neuro pathways, the synapse, from the brain to the hand still has obstacles.

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Appearances can be deceptive

Appearances can be deceptive, as they are with most people. On the surface I appear to be quite normal, a functioning human being doing what functioning human beings do. “You’re looking good” is what people say.

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The Struggle

Six months on from surgery and my life is still a struggle. I still feel useless, although I do try and make myself useful. I have perhaps 40% use of my left arm, gripping and holding things is the main problem, I still have double vision in my right eye and I am unstable on my feet.

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It’s been a tough week

I didn’t think I’d be so physically incapacitated. Or put another way, sometimes it’s better not to have full knowledge of the consequences of major surgery, it can lead to pre and post-operative despondency.

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A Love Story

I rode my bike for half an hour this morning. Previously, that is, pre surgery, a half hour bike ride would not have registered at all on Katrina’s radar, but today she was ecstatic because my current normal makes thirty minutes of intense exercise monumental.

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Brain Tumour

A short description of my brain tumour journey, a journey that is still not over.

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