Most Common Patient Perspective Responses

In Descending Order

 

Type of Brain Tumour (view all)
Symptoms (view all)
Age at Diagnosis (view all)
  • Meningioma
  • Astrocytoma
  • Glioblastoma Multiforme (GBM)
  • Oligodendroglioma
  • (DIPG) - Diffuse Intrinsic Pontine Glioma

  • Headaches
  • Vertigo
  • Memory Loss
  • Problems with Speech
  • Dizziness
  • > 2 Years
  • I Don't Know
  • 3-6 Months
  • < 1 Month
  • 1-3 Months
 
Surgeon Options (view all)

Initial Research upon Diagnosis (view all)

Time Between Diagnosis & Surgery (view all)
  • Another Diagnosis
  • A Brain Tumour
  • Not Applicable
  • It has been very beneficial
  • About the same benefit as before the brain tumour
  • It has been reasonably beneficial
  • It has not really been beneficial
  • It has had a detrimental effect on my recovery
 
  • 40-64
  • 25-39
  • 0-14
  • 19-24
  • > 64
 
Questions for the Surgeon (General) (view all)
Questions for the Surgeon (Symptoms) (view all)
Questions for the Surgeon (Prognosis) (view all)
  • 2-6 months
  • 3-6 weeks
  • 1-2 weeks
  • Less than 24 hours
  • 24-72 hours
  • I didn't feel the need to seek a second opinion
  • I sought more than 2 opinions
  • I sought a second opinion but stayed with my initial surgeon
  • Not Applicable
  • I sought a second opinion and went with that opinion
  • How often have you done this type of surgery?
  • What is the aim of my surgery?
  • How common is my tumour?
  • What is your opinion about the best treatment for me?
  • Can I record our conversation so that I don't miss any important information?
Questions for the Surgeon (Treatment & Support) (view all)
Medications (view all)
Complimentary & Alternative Therapies
  • What changes are normal and to be expected?
  • Are there any problems that I should look out for?
  • What do I do if these problems occur?
  • What symptoms or changes should I tell you about?
  • Am I likely to have seizures?
  • What effects should I expect after the surgery?
  • How long do you expect me to be in hospital?
  • What are the dos and don'ts of after care?
  • What problems should I look out for when I go home and who do I contact if they occur?
  • What additional treatment will I need after surgery?
  • Dysphasia (Inability to Speak)
  • Inability to Walk
  • Neuropathy (Tingling or numbness of hands or feet)
  • Dysphagia (Inability to Swallow)
  • Loss of the sense of Smell
Memory Loss Issues (view all)
Type of Memory Loss (view all)
Type of Balance Issues (view all)
  • Naturopathy
  • Medical Cannabis
  • Oncology Massage
  • Acupunture
  • Herbal Medicine
  • My fatigue does prevent a normal lifestyle but it is not debilitating
  • My fatigue is debilitating and prevents my ability to function normally
  • My fatigue is moderately debilitating but does not prevent my ability to function normally
  • Not Applicable
  • Other
  • Keppra
  • Dexemethazone
  • Somac
  • Temozolomide
  • Dilantin
Exercise Frequency (view all)
Type of Exercise (view all)
Length of Time Not Driving (view all)
  • Forgetting peoples names
  • Forgetting appointments
  • Forgetting to do chores around the house
  • Searching for words
  • Forgetting where I have put things
  • No Numbness, Hemeplegia or Neuropathy
  • Just my Head
  • Leg(s) and Arm(s)
  • Head, Leg(s) and Arm(s)
  • Just Arm(s)
  • Short Term Memory Loss
  • Both Short and Long Term Memory Loss
  • No Memory Loss issues
  • Long Term Memory Loss
Impact on Physical & Mental Wellbeing (view all)
Impact on Quality of Life (view all)
Impact on Social Engagement (view all)
  • I returned straight away to driving
  • I had to undergo a driving test prior to returning to driving
  • I am driving (no test required) but with conditions attached
  • Other
  • 6-12 Months
  • Less than 1 Month
  • 1-6 Months
  • 1-2 Years
  • More than 2 Years
 
  • Every day
  • 4 to 5 times a week
  • I am unable to exercise
  • 2 to 3 times a week
  • Once a week
Areas Where Support is Appreciated (view all)
Current Brain Tumour Awareness Roadblocks (view all)
 
  • Walking
  • Gardening
  • Swimming
  • Running
  • Cycling
  • Memory Loss
  • Chronic Fatigue
  • Loss of Balance
  • Stress
  • Depression
 

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Subscribe to new Brain Tumour Posts

Kia Ora. Sorry for the interruption but if you type your name and email address in the fields provided you'll receive my latest brain tumour scribblings as soon as they roll off the press, so to speak. What could be better, other than good coffee in the morning, comfortable non-slip gumboots, peace in the Middle East, having politicians who don't govern out of self-interest and a cure for all types of diseases, including, but by no means limited to, brain cancer.

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