Most Common Patient Perspective Responses

In Descending Order

 

Type of Brain Tumour (view all)
Symptoms (view all)
Age at Diagnosis (view all)
  • Meningioma
  • Astrocytoma
  • Glioblastoma Multiforme (GBM)
  • Oligodendroglioma
  • (DIPG) - Diffuse Intrinsic Pontine Glioma

  • Headaches
  • Vertigo
  • Memory Loss
  • Problems with Speech
  • Dizziness
  • > 2 Years
  • I Don't Know
  • 3-6 Months
  • < 1 Month
  • 1-3 Months
 
Surgeon Options (view all)

Initial Research upon Diagnosis (view all)

Time Between Diagnosis & Surgery (view all)
  • Another Diagnosis
  • A Brain Tumour
  • Not Applicable
  • It has been very beneficial
  • About the same benefit as before the brain tumour
  • It has been reasonably beneficial
  • It has not really been beneficial
  • It has had a detrimental effect on my recovery
 
  • 40-64
  • 25-39
  • 0-14
  • 19-24
  • > 64
 
Questions for the Surgeon (General) (view all)
Questions for the Surgeon (Symptoms) (view all)
Questions for the Surgeon (Prognosis) (view all)
  • 2-6 months
  • 3-6 weeks
  • 1-2 weeks
  • Less than 24 hours
  • 24-72 hours
  • I didn't feel the need to seek a second opinion
  • I sought more than 2 opinions
  • I sought a second opinion but stayed with my initial surgeon
  • Not Applicable
  • I sought a second opinion and went with that opinion
  • How often have you done this type of surgery?
  • What is the aim of my surgery?
  • How common is my tumour?
  • What is your opinion about the best treatment for me?
  • Can I record our conversation so that I don't miss any important information?
Questions for the Surgeon (Treatment & Support) (view all)
Medications (view all)
Complimentary & Alternative Therapies
  • What changes are normal and to be expected?
  • Are there any problems that I should look out for?
  • What do I do if these problems occur?
  • What symptoms or changes should I tell you about?
  • Am I likely to have seizures?
  • What effects should I expect after the surgery?
  • How long do you expect me to be in hospital?
  • What are the dos and don'ts of after care?
  • What problems should I look out for when I go home and who do I contact if they occur?
  • What additional treatment will I need after surgery?
  • Dysphasia (Inability to Speak)
  • Inability to Walk
  • Neuropathy (Tingling or numbness of hands or feet)
  • Dysphagia (Inability to Swallow)
  • Loss of the sense of Smell
Memory Loss Issues (view all)
Type of Memory Loss (view all)
Type of Balance Issues (view all)
  • Naturopathy
  • Medical Cannabis
  • Oncology Massage
  • Acupunture
  • Herbal Medicine
  • My fatigue does prevent a normal lifestyle but it is not debilitating
  • My fatigue is debilitating and prevents my ability to function normally
  • My fatigue is moderately debilitating but does not prevent my ability to function normally
  • Not Applicable
  • Other
  • Keppra
  • Dexemethazone
  • Somac
  • Temozolomide
  • Dilantin
Exercise Frequency (view all)
Type of Exercise (view all)
Length of Time Not Driving (view all)
  • Forgetting peoples names
  • Forgetting appointments
  • Forgetting to do chores around the house
  • Searching for words
  • Forgetting where I have put things
  • No Numbness, Hemeplegia or Neuropathy
  • Just my Head
  • Leg(s) and Arm(s)
  • Head, Leg(s) and Arm(s)
  • Just Arm(s)
  • Short Term Memory Loss
  • Both Short and Long Term Memory Loss
  • No Memory Loss issues
  • Long Term Memory Loss
Impact on Physical & Mental Wellbeing (view all)
Impact on Quality of Life (view all)
Impact on Social Engagement (view all)
  • I returned straight away to driving
  • I had to undergo a driving test prior to returning to driving
  • I am driving (no test required) but with conditions attached
  • Other
  • 6-12 Months
  • Less than 1 Month
  • 1-6 Months
  • 1-2 Years
  • More than 2 Years
 
  • Every day
  • 4 to 5 times a week
  • I am unable to exercise
  • 2 to 3 times a week
  • Once a week
Areas Where Support is Appreciated (view all)
Current Brain Tumour Awareness Roadblocks (view all)
 
  • Walking
  • Gardening
  • Swimming
  • Running
  • Cycling
  • Memory Loss
  • Chronic Fatigue
  • Loss of Balance
  • Stress
  • Depression
 

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